Thursday, July 19, 2012

Barely Holding On

I have been so crazy, so overwhelmed recently, that I think its safe to say I'm on the tightrope, but just barely. I'm only holding on by a couple of fingers while a tiny bird pecks at them, in the rain, with the wind blowing, and a giant gorilla is jumping down the line.

Lucky for me, that damn gorilla should wander away this afternoon after he realizes we held on and close on our forever home.  The trick will be to stop the rain and get our current house rented out and fully move.

I'm learning to work with the wind. I'm taking over the practice area of a colleague moving on to bigger and better things. It is exciting and scary all at once and a career move I relish.

I'm never going to get back on the line though and feel safe until that little bird stops pecking at my fingers. DQ has not been improving since my last post and her episode. I've watched her start to look worse and worse. She is showing more and concerning symptoms daily. Tomorrow, we see the cardiologist; the bird will fly away or start pecking harder.

I guess I'll just have to find a way to put on gloves.


  1. I sure have been thinking about you guys and praying for DQ! Many prayers going out for all of you that tomorrow you will get some answers and DQ can recover from whatever is troubling her. Hang on dear friend! Always here to "catch you" if you are ever afraid you might fall.

  2. Thank you so much, Stef! I know you are here for me and have helped me this week already. Thanks!

  3. Thinking of you and wishing you all the best during this time of change!

  4. Thinking of you and wishing you all the best during this time of change!


Having a child with a CHD is like being given an extra sense---the true ability to appreciate life. Each breath, each hug, each meal is a blessing when you've watched your child live off a ventilator, trapped in an ICU bed, being fed through a tube. Each minute is a miracle when you've watched your child almost die and come back to you.
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