This morning, I had the following conversation with DQ:
Mommy, I'm sad. People have been hurting my feelings and I feel sad.
"What have people done, Dancing Queen?"
They hurt my feelings, Mommy.
"How did they hurt your feelings?"
They said I'm going to die. And not die as adult like everybody else. They said I'm going to die as a kid.
"Who said that DQ?"
I don't know, Mommy, but it hurt my feelings. I'm very sad. I don't want to die.
How can I explain life and death to an almost 5 year old and a 6.5 year old? Why should I have to help my daughter understand when the doctors tell us that they are going to do nothing more to help her feel better; that they're not going to fix her heart; that they don't know what to do?
Monday night, that is exactly what we were told. DQ's heart will continue to go into worse heart failure and the doctors do not know how to make it better. They don't know how to save her. They know she won't grow to be an adult.
TRex was with me when I learned this news. He heard it all. We had to explain to the kids before we could comprehend everything. Why should I ever have to explain this?!?
I hate congenital heart defects!
No mother should ever have to explain this to her children. It breaks my heart!!
ReplyDeleteBest,
Bonnie
How scary and upsetting for all you. I hope knowing there are so many people out there sending love and support is at least helpful so you don't feel alone. xo
ReplyDeleteHow very upsetting to hear the conversation between the two of them. Breaks my heart. Praying for all of you and especially for DQ. {{{HUG}}}
ReplyDeleteSending you hugs and saying a prayer. I can't imagine how hard it is.
ReplyDeleteMay you find some comfort in knowing that your story has touched the lives of others and that people who have never met DQ are thinking of her and praying for her miracle.