This morning, I had the following conversation with DQ:
Mommy, I'm sad. People have been hurting my feelings and I feel sad.
"What have people done, Dancing Queen?"
They hurt my feelings, Mommy.
"How did they hurt your feelings?"
They said I'm going to die. And not die as adult like everybody else. They said I'm going to die as a kid.
"Who said that DQ?"
I don't know, Mommy, but it hurt my feelings. I'm very sad. I don't want to die.
How can I explain life and death to an almost 5 year old and a 6.5 year old? Why should I have to help my daughter understand when the doctors tell us that they are going to do nothing more to help her feel better; that they're not going to fix her heart; that they don't know what to do?
Monday night, that is exactly what we were told. DQ's heart will continue to go into worse heart failure and the doctors do not know how to make it better. They don't know how to save her. They know she won't grow to be an adult.
TRex was with me when I learned this news. He heard it all. We had to explain to the kids before we could comprehend everything. Why should I ever have to explain this?!?
I hate congenital heart defects!