Thursday, April 24, 2014


"Mommy, some kids don't like my shoes."

What do you mean, baby?

"They don't like the way one shoe is bigger than the other."

Do you tell the kids that these are your special shoes to help keep your legs even so you don't have hip and knee pain?

"Isn't there something else we can do instead of shoes?"

Your doctor who takes care of your legs said that he could do a surgery to cut a large piece of your big leg out and then your legs would be the same length.

"They will cut out my leg?"

That was the plan, honey, but we're not going to do that any more.  It is not worth the risk to you when your special shoes help just as well.

"What do you mean by risk, Mommy?"

When anyone has surgery and has to go to sleep for it, there is a danger because a machine is breathing for you instead of your lungs.  With you, Dancing Queen, it is much more dangerous because your lungs are so sick.

"So, the doctor's not going to cut my leg?"

No, honey.  We're not going to do that.  Your special shoes are much better than taking out a large piece of your leg, aren't they?

"Yes, Mommy, but I wish they weren't so big."

I know, honey.  Me too.

1 comment:

  1. The hell with the other kids, DQ! What do they know??


Having a child with a CHD is like being given an extra sense---the true ability to appreciate life. Each breath, each hug, each meal is a blessing when you've watched your child live off a ventilator, trapped in an ICU bed, being fed through a tube. Each minute is a miracle when you've watched your child almost die and come back to you.
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