Thursday, August 16, 2012

Beneath the Surface

It hides beneath the surface where nobody really sees.

She runs, she plays, she dances. She can't be sick.

But were you really paying attention? She stopped well before the other kids and started talking to you and making you forget she can't keep up. It's called a coping mechanism. She uses them all of the time--even when her physical and occupational therapists are testing her.

She is smart as a whip and will convince you to do something else if she can't keep up physically.

Heart disease is a silent killer.

Pulmonary hypertension is very well disguised.

All of it lethal.

If you don't pay close attention to every detail, you'd miss the decline.

Yes, she is sick. She hides it well. Don't hold it against her.

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Having a child with a CHD is like being given an extra sense---the true ability to appreciate life. Each breath, each hug, each meal is a blessing when you've watched your child live off a ventilator, trapped in an ICU bed, being fed through a tube. Each minute is a miracle when you've watched your child almost die and come back to you.
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