Wednesday, July 27, 2011

Wordless Wednesday: Typical Morning

The Dancing Queen is finishing her breakfast of chicken baby food, followed by meds (she takes between 9 to 11 a day--today 11).

4 comments:

  1. I'm still loving those glasses on the Dancing Queen! Try her with the hummus and steam some baby carrots to dip. Pita crisps are good too. I wonder if any of her meds cause her appetite to be less than stellar??

    Best,
    Bonnie

    ReplyDelete
  2. Bonnie,
    You are right, at least one of her meds does mess with her eating. Right after her last open heart surgery, she was started on enalapril again to decrease blood pressure and help her heart pump stronger. That was when she completely stopped eating. After discontinued the med, she started eating and stopped complaining of stomach pain. Unfortunately, she also started swelling again and showing signs of heart failure. So, we started her back on that med, but at a lesser dose. She continued to eat (not great, but eating) and she didn't have the signs of heart failure. We always wait to give that med at the end of her meals (after breakfast and after dinner). I'm sure daily aspirin isn't great for her belly either, but we did learn that the three doses of calcium carbonate that she gets daily help her belly with acid, much like the two doses of prevacid she gets.

    I don't think carrots for dipping will work, but broccoli she likes. Normally, for hummus, we do give her pita bread.

    ReplyDelete
  3. Love her little glasses! So cute!!

    Wow 11 meds?? That is mind boggling. Not sure how I would keep all of that straight. Kudos to you....more like big {{{HUG}}} for having to give DQ all those meds. I'm sure some days are better than others.

    ReplyDelete
  4. Well, Stef, I have a handy dandy chart on my computer with all of the meds (with all of them, she gets between 14 and 22 doses a day at 4 different times, with today being 20 doses). The chart is very helpful when she gets admitted then the nurses know exactly when to give the meds (not that they listen). It also helps when I have to fill out paperwork. I simply say see attached! But, really, the Mad Scientist and I don't need the sheet. She has been taking this many meds a day (not the same meds) pretty much since she was born. We're used to it. And she evens knows which meds she needs when and she can tell you what they do in a rudimentary fashion (such as "lasix helps me pee!" always said with glee.)

    ReplyDelete

Having a child with a CHD is like being given an extra sense---the true ability to appreciate life. Each breath, each hug, each meal is a blessing when you've watched your child live off a ventilator, trapped in an ICU bed, being fed through a tube. Each minute is a miracle when you've watched your child almost die and come back to you.
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