I hate the questioning! My husband and I have thought and thought and thought about what is best to do for the Dancing Queen. We have never taken any decision lightly, yet we are constantly being questioned.
I work full-time. So does the Mad Scientist. In order to pay for our house, my student loans, food, and maintain health insurance to cover DQ, we must work. We've debated over and over and over again whether the Mad Scientist should be a stay at home dad and keep DQ shielded from the world. We decided to put her out there, to let her live her life.
My daughter has DiGeorge's Syndrome and severe, complex heart defects and lung disease and I let her to go public school. She rides a bus. She plays with other kids. We take her to the zoo, the mall, and she went to the movie theater for the first time last weekend. We let her interact with other humans. You know what, she loves it! My daughter is a people person, who loves life. And if you asked her whether going to the hospital every other month was worth playing with friends, singing songs in a group, and playing at a park, she'd say yes.
Could I keep her in a bubble? Yes. Could I prevent her from being a part of the world? Yes. Would that keep her from getting sick? Maybe. TRex still would be going to school and he'd still get sick and bring it home. Maybe I should be keeping him home as well. Even if we kept her home and away from the rest of the world that she loves, there is no guaranty she would stay with us longer. The only guaranty in that would be a less happy child.
When DQ was under lock-down mode last August through November due to prepping for surgery and recovery, she was miserable. She wanted to go to school. She wanted interaction with other children. She wanted a life outside of her home. Staying hidden from the world is not her.
Yet, I constantly have people questioning my decision to let her live her life in the open. I promise you it was not an easy decision. I don't like the thought that my daughter could die from a virus caught on the school bus, but I also know there is NO guaranty she would be fine if we locked her away.
We choose life, lived to the fullest in our household. I wish people would understand and not question my decisions. We each have our own priorities, our own special problems. That leads each of us to take our own path. I will not question your choices. Please don't question mine.