I feel like I've glimpsed the future.
Yesterday, DQ had to be placed on oxygen because of the RSV. That is not surprising. What got me is that just before bed, they gave her steroids for the first time this hospitalization. She did great and probably didn't need the oxygen, but I made it clear I wanted her to sleep, so the nurses let her be. She slept great! Her heart rate was closer to an average 3 year olds heart rate. She slept comfortably. It was as if she wasn't running a marathon in her sleep like she normally does.
DQ obviously needs oxygen. It helps. For the first time, I really see why the docs made her wear oxygen to bed last year. Her special lungs need the extra help and the rest of her body likes it. With the help, she could rest like a healthy child.
Today, DQ is in the best condition she will ever be. In the future, she will only decline absent some miracle. She will need more aids. I glimpsed the future and I believe my baby will need to go back on oxygen at night. Eventually, she will need oxygen during the day. I don't think we will hit this point any time real soon, but it is there. Since the docs can't fix her lungs, this is her future.